27. Peutz Jeghers syndrome - A rare cause of recurrent intussusception in older children: A case report

Hoang Thi Minh Hiền, Nguyen Thi Dieu Thuy, Luong Thi Lien, Nguyen Thi Dung, Nguyen Thi Ha

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Abstract

Peutz Jeghers syndrome is a rare genetic syndrome, characterized by mucocutaneous pigmentation and hamartomatous polyposis of the gastro-intestinal (GI) tract. This is one of many causes of recurrent intussusception in older children. The incidence of this condition is estimated to be between 1 in 50,000 to 1 in 200,000 live births. Up to now, there is no specific treatment method, other than regular re-examination, removal of large polyps and screening for cancer risk. We report a case of a 13-years-old female hospitalized due to recurrent intussusception with flat brown-black pigmented macules concentrated on the face and scattered on the fingers and toes, with a healthy family history. Diagnostic imaging examination discovered many polyps stretching from the stomach - small intestine - colon, especially large polyps in the gastric antrum that had penetrated through the pyloric, causing pyloric stenosis, large polyps with sizes > 5cm in the small intestine causing intussusception of the small intestine over a long segment that does not spontaneously detach. Pathological results of all polyps removed were hamartoma polyps. Polyps > 1cm in size were removed through standard gastroesophageal endoscopy and colorectal endoscopy, and surgery intervention for small intestinal polyps unmanageable through standard endoscopy.

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References

1. Beggs AD, Latchford AR, Vasen HFA, et al. Peutz-Jeghers syndrome: a systematic review and recommendations for management. Gut. 2010; 59(7): 975-986. doi:10.1136/gut.2009.198499.
2. Klimkowski S, Ibrahim M, Ibarra Rovira JJ, et al. Peutz–Jeghers Syndrome and the Role of Imaging: Pathophysiology, Diagnosis, and Associated Cancers. Cancers. 2021; 13(20): 5121. doi:10.3390/cancers13205121.
3. McGarrity TJ, Amos CI, Baker MJ. Peutz-Jeghers Syndrome. In: Adam MP, Feldman J, Mirzaa GM, et al., eds. GeneReviews®. University of Washington, Seattle; 1993. Accessed November 19, 2023. http://www.ncbi.nlm.nih.gov/books/NBK1266/.
4. Van Lier MGF, Wagner A, Mathus-Vliegen EMH, Kuipers EJ, Steyerberg EW, Van Leerdam ME. High Cancer Risk in Peutz-Jeghers Syndrome: A Systematic Review and Surveillance Recommendations. Am J Gastroenterol. 2010; 105(6): 1258-1264. doi:10.1038/ajg.2009.725.
5. Wang Z, Wang Z, Wang Y, et al. High risk and early onset of cancer in Chinese patients with Peutz-Jeghers syndrome. Front Oncol. 2022;12:900516. doi:10.3389/fonc.2022.900516.
6. Saranrittichai S. Peutz-jeghers syndrome and colon cancer in a 10-year-old girl: implications for when and how to start screening? Asian Pac J Cancer Prev APJCP. 2008; 9(1): 159-161.
7. Riegert-Johnson D, Roberts M, Gleeson FC, Krishna M, Boardman L. Case studies in the diagnosis and management of Peutz-Jeghers syndrome. Fam Cancer. 2011; 10(3): 463-468. doi:10.1007/s10689-011-9438-x.
8. Wagner A, Aretz S, Auranen A, et al. The Management of Peutz–Jeghers Syndrome: European Hereditary Tumour Group (EHTG) Guideline. J Clin Med. 2021;10(3):473. doi:10.3390/jcm10030473.
9. Wangler MF, Chavan R, Hicks MJ, et al. Unusually Early Presentation of Small-Bowel Adenocarcinoma in a Patient With Peutz-Jeghers Syndrome. J Pediatr Hematol Oncol. 2013; 35(4): 323-328. doi:10.1097/MPH.0b013e318282db11.
10. Khanna K, Khanna V, Bhatnagar V. Peutz-Jeghers syndrome: need for early screening. BMJ Case Rep. 2018;11(1):e225076. doi:10.1136/bcr-2018-225076
11. Mărginean CO, Meliţ LE, Patraulea F, Iunius S, Mărginean MO. Early onset Peutz–Jeghers syndrome, the importance of appropriate diagnosis and follow-up: A case report. Medicine (Baltimore). 2019;98(27):e16381. doi:10.1097/MD.0000000000016381.
12. Tse JY, Wu S, Shinagare SA, et al. Peutz-Jeghers syndrome: a critical look at colonic Peutz-Jeghers polyps. Mod Pathol. 2013;26(9):1235-1240. doi:10.1038/modpathol.2013.44.
13. Latchford A, Cohen S, Auth M, et al. Management of Peutz-Jeghers Syndrome in Children and Adolescents: A Position Paper From the ESPGHAN Polyposis Working Group. J Pediatr Gastroenterol Nutr. 2019;68(3):442-452. doi:10.1097/MPG.0000000000002248.
14. Yamamoto H, Sakamoto H, Kumagai H, et al. Clinical Guidelines for Diagnosis and Management of Peutz-Jeghers Syndrome in Children and Adults. Digestion. 2023;104(5):335-347. doi:10.1159/000529799.