43. Father-son renal transplantation of X-linked alport syndrome with COL4A5 mutation: A case report

Luong Thi Phuong, Nguyen Thuy Linh, Thai Thien Nam, Nguyen Thu Huong

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Abstract

Alport syndrome is an inherited renal disease caused by mutations in collagen type IV frequently resulting in end-stage renal disease. Reports around the world showed that patients with Alport syndrome who underwent renal transplantation had generally excellent outcomes. We reported a case of an 8-year-old boy diagnosed with glomerulonephritis - Alport syndrome with an X-linked COL4A5 gene mutation, progressing to end-stage chronic renal disease after 5 years. The child was treated with peritoneal dialysis for 6 months. After that, we performed a renal transplant with his father as the donor. Kidney transplant function fully recovered 7 days after surgery. Currently, 5 months post transplantation, he has gained 7kg, has normal blood pressure, normal serum urea and creatinine, and no proteinuria or hematuria. The case would like to emphasize the importance of a comprehensive analysis involving clinical signs, family history, and genetic testing for accurate diagnosis of Alport syndrome and consider renal transplant when the patient’s condition progresses to end-stage renal disease.

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References

1. Katayama K, Nishikawa K, Hane A, et al. Mother-Son Kidney Transplantation in Patients With X-Linked Alport Syndrome. Kidney International Reports. 2021;6(5):1454-1458. doi:10.1016/j.ekir.2021.02.037
2. Nerli RB, Ghagane SC, Patil MV, et al. Renal Transplant in a Child with Alport Syndrome. Indian Journal of Transplantation. 2017;11(2):86. doi:10.4103/ijot.ijot_22_17
3. Watson S, Padala SA, Hashmi MF, et al. Alport Syndrome. StatPearls. Published 2024. Accessed April 25, 2024. http://www.ncbi.nlm.nih.gov/books/NBK470419/
4. Morinière V, Dahan K, Hilbert P, et al. Improving mutation screening in familial hematuric nephropathies through next generation sequencing. J Am Soc Nephrol. 2014;25(12):2740-2751. doi:10.1681/ASN.2013080912
5. Kelly YP, Patil A, Wallis L, et al. Outcomes of kidney transplantation in Alport syndrome compared with other forms of renal disease. Ren Fail. 2016;39(1):290-293. doi:10.1080/0886022X.2016.1262266
6. van der Loop FT, Heidet L, Timmer ED, et al. Autosomal dominant Alport syndrome caused by a COL4A3 splice site mutation. Kidney Int. 2000;58(5):1870-1875. doi:10.1111/j.1523-1755.2000.00358.x
7. Warady BA, Agarwal R, Bangalore S, et al. Alport Syndrome Classification and Management. Kidney Med. 2020;2(5):639-649. doi:10.1016/j.xkme.2020.05.014
8. Kashtan CE. Renal transplantation in patients with Alport syndrome. Pediatr Transplant. 2006;10(6):651-657. doi:10.1111/j.1399-3046.2006.00528.x
9. Kashtan C. Alport syndrome: facts and opinions. F1000Res. 2017;6:50. doi:10.12688/f1000research.9636.1
10. Plevová P, Gut J, Janda J. Familial hematuria: A review. Medicina (Kaunas). 2017;53(1):1-10. doi:10.1016/j.medici.2017.01.002
11. Cosgrove D, Liu S. Collagen IV diseases: A focus on the glomerular basement membrane in Alport syndrome. Matrix Biol. 2017;57-58:45-54. doi:10.1016/j.matbio.2016.08.005
12. Thorner PS. Alport syndrome and thin basement membrane nephropathy. Nephron Clin Pract. 2007;106(2):c82-88. doi:10.1159/000101802
13. Koç A, Bora E, Cinleti T, et al. Initial Next-Generation Sequencing (NGS) Results of Alport Syndrome. The Journal of Basic and Clinical Health Sciences. Published online September 1, 2019. doi:10.30621/jbachs.2019.719
14. Mallett A, Tang W, Clayton PA, et al. End-stage kidney disease due to Alport syndrome: outcomes in 296 consecutive Australia and New Zealand Dialysis and Transplant Registry cases. Nephrology Dialysis Transplantation. 2014;29(12):2277-2286. doi:10.1093/ndt/gfu254
15. Patel H, Kute V, Patel H, et al. Outcome of renal transplantation in Alport’s syndrome: A single-center experience. Transplantation. 2020;104(S3):S411. doi:10.1097/01.tp.000070 0692.33508.84